So I have decided to start a new blog for Noah and his journey with FoxG1 Syndrome and Epilepsy. I am so exicted to have met 2 other moms recently whose child shares the same rare genetic disorder as Noah, FoxG1 Syndrome. If any other parents whose child has been diagnosed with FoxG1 that read my blog, I would love to hear from you. I read one place where only 12 or so kids have been diagnosed with FOXG1. Not sure how accurate that is but it does go to show how rare it is.
Now that this site is a little more user friendly for me I am going to try my best to update often.
