He did really well with the NG tube feedings, but he pulled the tube out a few times. His GI doctor wanted to try this to make sure he could handle tube feedings before doing the g-tube button. Well after 4 days, we all made the decision to proceed with the g-tube surgery. His doctor went ahead and did it the next day because with him now aspirating liquids, it was not safe for him to not have some type of tube. We all knew Noah would more than likely pull the NG tube out on the way home from the hospital, so we really didn't have a choice.
The doctor went with the AMT mini one non balloon tube. I was hoping he would get the AMT mini after seeing someone else who had it. It is smaller than the Mic-key and it's low profile, so that should be good for when he army crawls. The doctor decided to go with this one since it's a non balloon and would be harder for a child to pull out. Noah doesn't really mess with his button. The tubing and extension he likes to yank on though. He's such a stinker.
They put him on Elecare Jr formula due to his EOE. So far he has done well, with the exception of last night and earlier today. He had some tummy trouble that left him screaming and crying. So far this afternoon he has done much better. He gets tube feedings 4 times a day during the day and a continuous feed at night for 8 hours. He can no longer drink by mouth, but he is still eating by mouth with the tube feeding as a supplement.
This has definitely been an adjustment for us, but we will manage. Goal is to add some wright to his skinny body :).
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