Stroll for Epilepsy

The Stroll for Epilepsy will be April 14, 2012 at the Houston Zoo. Our team, Noah's Ark, will be participating for our third year in a row. We would be honored if you joined us at the zoo. Our team goal is $2000. We raised $3386 for the past 2 years for the Epilepsy Foundation. The money raised sends kids to camp, provides clinics for people with no insurance, educates people about epilepsy and seizure disorders and helps a person with epilepsy learn job skills to become employed.

We will be selling tshirts for $15 each to help raise money for our team. Thes are sizes Youth S - Adult 5X. We will have toddler sizes as well (price not set in stone yet for those sizes). If you would like to purchase a tshirt to help, please contact me.

On March 17, 2012, we will have our 2nd annual garage sale where 100% profit goes towards our team goal. Last year we raised close to $500 at our garage sale. Any donations of unwanted items that you have laying around are greatly appreciated :). We received so many donated items last year, which made the garage sale a success.

To join or send a monetary tax deductible donation, please visit the Epilepsy Foundation website and click on Noah's Ark. Noah's Ark

                                                                    2011 Team

                                                                    2010 Team

                                                                        T-Shirt

Weight Gain!

Noah had an GI follow up appointment today and he has FINALLY gained some weight. Only 1.32 lbs, but still a weight gain. It has been about 8 months since he has gained any weight. Dr. Debroy wants to so another EGD to see if the Eosinophilic Esophagitis (EE) has returned and to also do a 24 hour PH Probe study. Hopefully Noah will gain another pound by his next followup and keep the weight gain up so we can bypass getting a G-Tube.

Another good note....I have found 10 other families that have a child with FOXG1. It is so amazing to hear everyones stories. All of the kids are so much alike. If you read Noah's blog and have a child with FOXG1, look up our group on facebook. Its a closed group so its just us parents :).