Noah had an GI follow up appointment today and he has FINALLY gained some weight. Only 1.32 lbs, but still a weight gain. It has been about 8 months since he has gained any weight. Dr. Debroy wants to so another EGD to see if the Eosinophilic Esophagitis (EE) has returned and to also do a 24 hour PH Probe study. Hopefully Noah will gain another pound by his next followup and keep the weight gain up so we can bypass getting a G-Tube.
Another good note....I have found 10 other families that have a child with FOXG1. It is so amazing to hear everyones stories. All of the kids are so much alike. If you read Noah's blog and have a child with FOXG1, look up our group on facebook. Its a closed group so its just us parents :).
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